Beyond pain relief: physiotherapy in children with cerebral palsy under palliative care

Abstract

Physical therapy for children with cerebral palsy (CP) in palliative care presents significant challenges for families, requiring emotional, social, and structural adaptations. This study aimed to understand the opinions of parents of children with CP receiving palliative care regarding physical therapy in this context. It is qualitative research with a descriptive approach, in which interviews were conducted with family members of children with CP. Data analysis followed the principles of thematic content analysis. The results highlighted that comprehensive care in the follow-up of children with cerebral palsy, as well as their overall well-being, goes beyond traditional therapeutic interventions. Attention to emotional and psychological needs, as well as empathetic and clear communication with caregivers, was considered essential to strengthening the relationship between professionals and families. Another relevant point was the constant need for physical therapy professionals to update their knowledge, mastering new techniques and using resources such as orthoses and assistive technologies, especially in severe cases and those involving reduced mobility. Thus, the findings suggest that the combination of technical knowledge, sensitivity, and respect for the uniqueness of each child and their family transforms physical therapy into a more effective and humanized experience, contributing to improved quality of life and emotional support for the families involved.